As the days pass, each seems to be packed full of surprises and responsibilities. I almost feel what they call "survivors guilt". I seem to be living more and more days like it never happened. Yes I still have short hair, havent lost the steroid weight, and my energy levels arent back to 100% yet... but ultimately its been nice to not let my mind wander, or wonder. Not everyone went through the process as easily as I did. So many others dealt with so much worse, and my heart goes out to them.
I had my first follow up with the ONC this week, and I love the fact that she doesnt want to use the PET scan as a diagnostic tool. A virus, an infection can set off all kinds of hot spots on those scans that would creat a whirlwind of painful tests, and un-necessary freaking out. A physical exam found no swollen lymph nodes. Now a CT is being scheduled in November to check out the ol' chest/heart area which is where the major tumor resided. (PAST TENSE) This means, NO SCANXIETY until after the wedding!
Cody and I have picked up where things left off in September 09 and are loving every minute of it.
(pictures to come - once I figure out blogspots issues)
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I just had a very similar conversation with my doc regarding PET scans. Not much evidence that they have any real benefit in the absence of symptoms and they increase your radiation exposure. Her plan for me will be regular physical exams and anual chest X-rays.
ReplyDeleteHi there,
ReplyDeleteI just stumbled upon your blog on the Stupid Cancer Blogroll...really great! I'm also a recent survivor of Hodgkin's/planning a wedding/moving on with life. I'm so glad I found your blog and wanted to invite you to check out mine: thecancerdancer.blogspot.com.
Take care,
Anne